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I have LCIS, anyone else?

Breast Cancer | Last Active: Aug 12 12:20pm | Replies (62)

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@nbrooks

I completely agree and hope more women will open up about there experiences with LCIS and ADH. The closest Mayo Clinic that will see me is in Arizona. I live in South Carolina. I am not opposed to going, but feel I need to see if I can get more information with my doctors here. I would like to know hat even though I haven’t been diagnosed with Cancer, should I see an Oncologist? I am being checked every six months for the rest of my life by mammogram and MRI. The information can be confusing. Thank you for replying. I’m glad we can all be here for each other.

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Replies to "I completely agree and hope more women will open up about there experiences with LCIS and..."

I was diagnosed with ALH in 2022, which was a year after having breast cancer in 2021, so I was already seeing an oncologist. I don’t believe I would have been seen by an oncologist otherwise since LCIS isn’t considered cancer, even though the word carcinoma is used. They should change the name. It feels like I’m a ticking time bomb, but I know that monitoring is the recommended treatment for it.