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Post covid itch and hives

Post-COVID Recovery & COVID-19 | Last Active: Jul 12 2:12pm | Replies (93)

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Profile picture for deboah13 @deboah13

I started to get that itching on my mid upper back and arms and almost 9 months ago now. I thought it was eczema. I went to one dermatologist and she ened up a freezing a few spots. She said it had to do with my nerves? It was a medically complicated explanation. So I went to another dermatologist for a second opinion (always do that and research it for yourself!).
At the end of the day, it ended up being contact hives, more specifically, see below.
Chronic idiopathic urticaria (CIU) is the persistent, often daily appearance of hives (urticaria) that last for six or more weeks for no known reason. These hives are often itchy welts or bumps that appear when a trigger in the body causes mast cells to release histamine, serotonin, or other chemicals under the skin (which they are finding out is related to long Covid).
I had already been on Dupixent, which both dermatologist said that if I hadn't, that the hives would have been worse. The second dermatologist put me on the Xolair, but before the third injection, I ended up itching worse than before and stopped using it. Right now, I just continue my Dupixent injections (2x a month), use my over the counter FexofenadineHydochloride (allergy relief-two times a day), and my Triamcinolone Acetonide cream (as needed). I traded out my body wash for some Aveeno body wash that is fragrance free and try to keep my skin moisturized. If you have animals, keep your bed sheets clean as often as you can too.
This has at least kept my itching managable. I hope this helps someone out there. I'm actually going to see a third Dermatologist this week, I don't give up that easily to try and figure things out. I've been doing a lot of research on my own and hoping to figure something out. Keep you all posted.

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Replies to "I started to get that itching on my mid upper back and arms and almost 9..."

I too have the itching on my mid back and have had it since I got the first Covid Vaccine over three years ago. I only got the first two shots (thank the Lord) but the itching is horrible. It comes when I am stressed, get hot, wear something that is irritating to my skin, or sometimes just out of the blue. I don't think I have a rash just a few bumps that I can feel when I reach my hand back. I also get really itchy on my head. I also have switched shampoo's, body wash, laundry soaps, lotions, etc to all things pure. I have been diagnosed with Chronic Spontaneous Urticaria. I have been tested for Mastocytosis (which came out negative) because my tryptase levels are so high and if I get bit by any type of Spyder, bug, mosquito, or Bee I have a severe reaction due to the High Tryptase levels that become even higher. My allergist said that you can have Spontaneous Chronic Urticaria without having a rash, that it can be internal. It is no fun itching all the time. I have been getting injections of Xolair monthly for at least a year and they have helped but this time they injected one shot into my stomach rather than one in each arm and it didn't work at all.

Tell me more about your Dupixent and Xolair issue? You itched more with both? I have been on Xolair for years and it doesn't seem to do much. Just today I convinced my dermatologist to prescribe both. I have heard, albeit anecdotally, that both will do the trick? I use the other meds you mention and none of them do very much. Any further info would be appreciated.