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DiscussionPancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 2 hours ago | Replies (1382)Comment receiving replies
Replies to "My sense is that medical professionals aren't being deceitful ... but are rather providing information related..."
In my case they were deceitful. My surgeon recommended maintenance chemo for me and when I asked my onc she said there was no reason for it since my margins were clear and ca19-9 was low. During my chemo, which followed my surgery, there was a soft tissue area around my hepatic artery that lit up that was of concern to me which I brought up. The radiologists guessed it was scar tissue. 4 months after my chemo ended my ca19-9 went up to eventually 3840. I had another EUS and the dr told me the cancer was in my hepatic artery. I was naive to think after my distal surgery and chemo that my cancer was all gone. If I knew the very aggressive nature of pancreatic cancer line these drs did then I would have demanded maintenance chemo; especially in light of that soft tissue area around my hepatic artery. I asked for 2nd opinions from my hmo group but was denied. I offered cash payment to Mayo for 2nd opinion and was denied because I had Medicare based health plan; so yes I say my oncologist wasn’t forthcoming with me on the very high chances that my cancer would come back. It was the people on this board (markymarkfl being one of the main ones but others as well) that provided the knowledge about this disease.