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Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 2 hours ago | Replies (1382)Comment receiving replies
Hello 199,
Thank you for answering my questions which probably sounded a bit intrusive, but they give all of us hope! I’m so glad to hear about your success and it’s good to know you can remove the cisplatin and still get fantastic results. Not to sound like a Debbie downer, and just based on my own personal experience which could be different from your own, but keep good watch on that ca19-9 and get it checked regularly (not every 3 months). Go to your primary care dr if necessary to get more orders if your oncologist doesn’t want to.
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marienewland,
I did not find your questions to be intrusive. It took me so long to find this site which helps us all with new ideas and treatments. (& I was diagnosed in 2022 @ Mayo!)
Cisplatin was never mentioned to me by Mayo or my local oncologist. Just the gemcitabine & Abraxane did do a fantastic job:) You are not a "Debbie downer", I get my CA 19-9 checked monthly. I have a CT every 3 months. This month is my CT and I will see my oncologist 4 days after the CT. My CT went down 2 (34.9) points @ the end of January but is up to 43.6 in Feb. and we will see what is going on. I hope it comes down again in March. It has been as low as 8 about a year ago. My understanding is that it can fluctuate depending on lots of things like inflammation, gallstones, emphysema & benign breast disease to name a few (all of which I have). So I am waiting to see what this month brings before I start to worry.
Life is much better on a break but the concerns do not go away. Must stay vigilant.