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Post prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Jun 1, 2024 | Replies (53)

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@dadcue

"I used the measurement of ‘is this as bad as what I felt at the beginning of having PMR?’ Usually the answer was no, but there were times I wanted to schedule an appt to see if I needed to go back on prednisone, then the pain would lessen some."

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I used to do this too except I used it for deciding what dose of prednisone I should take.

There was also a "survivability" aspect to whatever was the latest onset of pain. It was somewhat reassuring to me when I could say "it has hurt worse before and I survived."

My whole experience with a variety of autoimmune difficulties has built up my tolerance level for pain. Little stuff isn't so concerning anymore. I don't expect to be pain free ever again. Presently, it is probably "as good as it gets" and I'm off prednisone.

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Replies to ""I used the measurement of ‘is this as bad as what I felt at the beginning..."

@dadcue. Very wise words. It’s tricky to navigate and sometimes so difficult to endure the discomfort, but the pain does pretty much end. I say pretty much because there are aches and pains and I can’t eliminate the possibility of my arthritis in the equation.