I’m sorry I thought I posted an update but I guess not . I finally was able to start the Genotropin at the end of October and I seemed to have more energy for just a little bit but didn’t feel quite normal. Around Christmas, it went back to square one (probably from overdoing it, and added stress). I just seen my doctor for a follow up a couple weeks ago and he increased my dosage and also I’ve been doing my own research because I am tired of living like this, so since February 11th I quit eating process foods altogether, and I started the carnivore diet which I have been researching and it’s supposed to heal auto immune diseases and so much more. Go to YouTube and search Jordan Peterson and his daughter (forgot her name) and the carnivore diet. It healed them. So I don’t know if it’s the increased dosage of the Genotropin and/or the carnivore diet but I am feeling so much better. And this is within a month. When starting off on the medication, they start at a certain dosage, and it has to be tweaked like any other.
My Endocrinologist told me he is the only doctor around that believes that growth hormone injections treat this disease. And he correct because I have been to many and had no answers or help. He is the head of the Metro Detroit Endocrinology Center in Dearborn Michigan. His name is Dr. Azohaili.
So if you live in Michigan, I would suggest make an appointment there. If you don’t live in Michigan, I would call around to different endocrinology centers in your area and ask if any of the doctors specialize in this. If not, I would make a trip up to Michigan. He is a lifesaver.