I was diagnosed with invasive lobular carcinoma in Dec. 2023. I also have PLCIS (Pleomorphic LCIS). I had a lumpectomy, but the margins were not clear. I understand that with classic LCIS this would not be a big concern, but with PLCIS, the margins must be clear. So now I am trying to decide between another lumpectomy plus radiation OR a mastectomy. (I am not considering a double mastectomy for now, although I am waiting for results of gene testing.)
I would LOVE to hear from anyone with PLCIS. It accounts for about 5% of lobular cancers, and lobular are only 10 - 15% of breast cancers, so it's rare. Thanks!