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I was diagnosed with invasive lobular carcinoma in Dec. 2023. I also have PLCIS (Pleomorphic LCIS). I had a lumpectomy, but the margins were not clear. I understand that with classic LCIS this would not be a big concern, but with PLCIS, the margins must be clear. So now I am trying to decide between another lumpectomy plus radiation OR a mastectomy. (I am not considering a double mastectomy for now, although I am waiting for results of gene testing.)
I would LOVE to hear from anyone with PLCIS. It accounts for about 5% of lobular cancers, and lobular are only 10 - 15% of breast cancers, so it's rare. Thanks!
Replies to "I was diagnosed with invasive lobular carcinoma in Dec. 2023. I also have PLCIS (Pleomorphic LCIS)...."
@dlst, I had a needle biopsy due to my mammogram showing an architectural distortion. The pathology report found LCIS with micocalcifications. I am having an excisional biopsy on Wednesday. The fact that the LCIS is associated with a sclerosing lesion and microcalcifications makes me wonder if it is PLCIS or FLCIS. Can I ask you if you were diagnosed with PLCIS after the needle biopsy or after an excisional biopsy? I read that classic LCIS is not typically associated with microcalcifications or a lesion. Thanks!
Did you decide what to do? Did you go go with another lumpectomy w/radiation or a mastectomy?
I am confused by what you say ... that PLCIS accounts for 5% of lobular cancers. PLCIS is not cancer. My breast surgeon said they still don't know if it's a direct pre-cursor of invasive breast cancer (if left alone). There is, however, a pleomorphic version of invasive lobular cancer. Is that what you are referring to? If so, that is different from PLCIS (a rare variant of the more classic LCIS) and is considered a risk factor for invasive lobular or invasive ductal cancer within one's lifetime (maybe more so ILC).
I hope you are doing well.
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Welcome, @dlst. Allow me to bring @beachysol @lexalaska @timely into this discussion. They also have experience with pleomorphic LCIS (PLCIS).
DLST, have you decided in the meantime whether to have another lumpectomy plus radiation or a mastectomy?