Replies to I was diagnosed with invasive lobular carcinoma in Dec. 2023. I also have PLCIS (Pleomorphic LCIS)….

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Breast Cancer | Last Active: Apr 14 4:33pm | Replies (64)

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@dlst

I was diagnosed with invasive lobular carcinoma in Dec. 2023. I also have PLCIS (Pleomorphic LCIS). I had a lumpectomy, but the margins were not clear. I understand that with classic LCIS this would not be a big concern, but with PLCIS, the margins must be clear. So now I am trying to decide between another lumpectomy plus radiation OR a mastectomy. (I am not considering a double mastectomy for now, although I am waiting for results of gene testing.)
I would LOVE to hear from anyone with PLCIS. It accounts for about 5% of lobular cancers, and lobular are only 10 - 15% of breast cancers, so it's rare. Thanks!

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Replies to "I was diagnosed with invasive lobular carcinoma in Dec. 2023. I also have PLCIS (Pleomorphic LCIS)...."

Colleen Young, Connect Director | @colleenyoung | Mar 10, 2024

Welcome, @dlst. Allow me to bring @beachysol @lexalaska @timely into this discussion. They also have experience with pleomorphic LCIS (PLCIS).

DLST, have you decided in the meantime whether to have another lumpectomy plus radiation or a mastectomy?

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kh4976 | @kh4976 | Apr 13 9:25pm

@dlst, I had a needle biopsy due to my mammogram showing an architectural distortion. The pathology report found LCIS with micocalcifications. I am having an excisional biopsy on Wednesday. The fact that the LCIS is associated with a sclerosing lesion and microcalcifications makes me wonder if it is PLCIS or FLCIS. Can I ask you if you were diagnosed with PLCIS after the needle biopsy or after an excisional biopsy? I read that classic LCIS is not typically associated with microcalcifications or a lesion. Thanks!

Did you decide what to do? Did you go go with another lumpectomy w/radiation or a mastectomy?

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