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Undifferentiated Connective Tissue Disease

Autoimmune Diseases | Last Active: Jul 26 3:41pm | Replies (34)

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@sommerreign

It gets tiring having to explain an autoimmune connective tissue disorder to friends & family~
I’m disconnecting rather than trying to help ppl understand anymore.
When asked “how are you” I say “good & how are you?” B/c I’ve discovered nobody really wants to know,….
Being alone and isolated is often harder than carrying the burden of this painful disorder that has ruined my life…

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Replies to "It gets tiring having to explain an autoimmune connective tissue disorder to friends & family~ I’m..."

Oh, how I hate the “How are you?” question!! It reminds me that I am certainly NOT great. I get annoyed because it is a constant reminder that I don’t feel well and that I am doing all I can to just put one foot in front of the other. I agree that most don’t really want to know so I too am starting to reply with “fine,” but each time I do, it reminds me that I am the only one living in my reality and that is definitely a lonely place to be.

There is another group of people who always say, “What did you do this weekend?” Or “Do anything fun this weekend?” Well, on a good weekend I did some laundry and some dishes but mostly tried desperately to rest and not wallow in self-pity. Does that sound fun? I don’t think that’s the answer they expect to get so instead I say “oh, nothing much. Just a quiet weekend.” Of course they say “oh, that sounds great!” I wish they would just stop asking.