← Return to Autonomic Neuropathy - Looking to talk with others

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@mojoearle

Hi! I just have to tell you that you are not alone. I'm 33 almost 34 and was a major athlete my entire life and I was also diagnosed with Autonomic neuropathy in 2015 at the Mayo Clinic in Scottsdale and I am also getting ready to go through chemotherapy for my thyroid gland and was diagnosed with Hashimoto's in 2015 as well, along with many other medical conditions. I hate that I am not even 34 years old and dealing with all of this medical stuff and it's really hard for me to explain to friends and family members about my health and I haven't been able to work in almost 5 years! I have not tried Cymbalta, but that's because my heart won't let me and I hate having to rely on heavy doses of narcotic painkillers and worry about running out and going through withdrawals NOT because I'm addicted to them but because after being on them for so so many years my body is definitely dependent on them. I have such bad bone pain and muscle aches and spasms and I have had 16 surgeries including hip and knee replacements. I also have EDS or Elhers-Danlos Syndrome and I can't help but worry that I brought a lot of my serious chronic health problems on myself after being way too hard on my body for decades being too underweight and pushing myself way too hard in many sports; even though I know I didn't really cause all of my problems.
Ahh...... I GOTTA GO TALK TO ONE OF MY 50 DOCTORS ON THE PHONE RIGHT NOW BUT WILL COME BACK TO THIS THREAD ASAP

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Replies to "Hi! I just have to tell you that you are not alone. I'm 33 almost 34..."

Hi Mojoearle, Thank you for your reply. I got my AN from living in an extremely, horrible, old, moldy house! I don't have Hashimoto's Disease, however I'm going to request a referral to an Endocrinologist as I have never been evaluated. Since I became sick my Thyroid levels are uncontrollable! Dose of Synthyroid up & down. My levels won't stabilize. Next up for me will most likely be home IV infusion of steroids. Something has to be done, as I'm losing my battle! I'm not looking forward to being on steroids though. My pain levels are off the charts. Also now I am blowing blood vessels in my hands just from lifting my lap top case! Scary! I still push myself every day. I do a lot of things I shouldn't, but I'm single, on my own so I have too! I do try to walk every day. I hope we stay in touch! Have a good week, ~Katt~