← Return to Progressive encephalomyelitis with rigidity and myoclonus (PERM): Help

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@ellenanne33

There are alot of side effects but they do believe it may slow progression ,may give him some quality of life and or go into remission .did meet w the team of neruro docs .this is our last line of treatment and i dont want to have any regrets .coukda , shoulda at least i will know we did all we could do for my husband .thank you for reaching out but i have to say they were all great w our meeting and if there is a glimmer of hope then the rest is in Gods hands ..

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Replies to "There are alot of side effects but they do believe it may slow progression ,may give..."

@ellenanne33 I’m so glad that you had positive meeting with the neurologists. That is THE key to good care!