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Diagnosed with SCC on base of tongue

Head & Neck Cancer | Last Active: Mar 18 11:49am | Replies (31)

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@tracymef

I am a SCC base of tongue pioneer. I was diagnosed in 2006. Had 2 rounds of chemo but the worst for me was the 36 rounds of radiation. I have a lot of side effects due to the radiation-severe dysphagia, severe xerostomia, my airway continues to shrink and is now about the size of a quarter. So eating is very difficult so I now have a permanent feeding tube. I also have velopharyngeal dysfunction. I could take up a whole page discussing all the problems I have due to my treatment. And even though I had this cancer many years ago, new problems continue to surface due to the treatments. But please do not get discouraged. They have made great strides with treatment. Back when I was diagnosed, this cancer was rare. Therefore, they treated it very aggressively. They have since learned it doesn't need to be. Tell your husband to stay positive. I believe that is the biggest healer. Don't think about "the what can happen", think about the "what I'm going to do after this is over". Best of luck to you all.

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Replies to "I am a SCC base of tongue pioneer. I was diagnosed in 2006. Had 2 rounds..."

@tracymef, welcome. It's inspiring to hear from a pioneer who was diagnosed almost 20 years ago. Are you still following by your cancer team or is your care long since transitioned to your primary care physician?