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Atypical pulmonary carcinoid

Neuroendocrine Tumors (NETs) | Last Active: Mar 3 5:57am | Replies (26)

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@ekri

My sister asks if you were able to tolerate the chemo. At the moment she has complications from sugery, inflammation of pericardium, and after ibuprofen treatment has proven ineffective is on cortisone to help reduce inflammation. From what I've read this chemo is very strong and has many adverse side effects. Seeing as my sister has to continue treatment for her inflammation I don't know how she will be able to handle this treatment. Could you also tell me which lymph nodes were affected in your case, your mitosis , ki67, and stage. Thank you.

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Replies to "My sister asks if you were able to tolerate the chemo. At the moment she has..."

My chemotherapy was difficult to deal with, it wasn’t immediate but accumulative effects were challenging. Fatigue, dizziness were the biggest issues hair loss started after the first month or 4th infusion treatment. Every hair on my body hurt during its loss. It was like needles poking at me.

It is important to know I am in my late 60s and was very fit for my age group as I was an active health conscious senior.
That being said the treatments both radiation and chemotherapy have had long lasting and beneficial effects. It took a year for my body to process out the negative side effects.

The encouraging side of treatment was that it reduced tumors sizes by 50% and the cancer or targeted tumors show no signs of growth to date.

Throughout my treatment I tried to maintain my role as the perfect patient, focusing on staying healthy and let the doctors guide me through the treatment process.

I have the data from the cancer and all the treatments but that really wasn’t my focus. Once I received the cancer diagnosis it turned my world upside down. Both physically, emotionally, and mentally. I took up the challenge on all 3 fronts.

I let the physicians handle the physical part and I took charge of the emotional and mental aspects of the treatment. I read the books that prepared me for end of life planning. I also engaged with a good psychologist to help control the mental aspects of the disease.

You will want to connect with Ronnyallan.net to lean more about this cancer and its treatments. He is the on facebook as well.

Know that I have a dozen active nodules but 2 large tumors that are being monitored for treatment. Upper left lobe of lung and #5 lymph node were focus of the radiation.

There is peace knowing we live in a world of modern medicine that can extend our lives out much longer than our ancestors had. My quality of life has not gone down after the treatment but it is more of a struggle for me to keep motivated as I progress through the illness.

At 18 months into my diagnosis I am finally getting back to feeling normal. I have just made plans for a cross country road trip to see my family scattered across this great country. With international travel plans for later in the fall.

I consider my cancer as an opportunity for a better me. And I approach my days with a different mindset than the per-cancer me. While the initial shock has worn off my commitment to body, mind and soul has not. I hope you and your family find the same peace.

Wishing you many blessings
CEB