Connect
← Return to Atypical pulmonary carcinoid
Discussion
Neuroendocrine Tumors (NETs) | Last Active: Mar 3 5:57am | Replies (26)
Comment receiving replies
I was diagnosed with atypical carcinoid of the lung that had metastasized to my lymph nodes. Mine was determined to be non operative. I went through both radiation and chemotherapy using cisplatin and etipisode. The treatment was successful in stopping the progression of the tumors. I am now on monthly injections of lanreotide with quarterly PET scans to monitor its progression.
To date my prognosis is favorable so my job now is to continue to live my best life.
Many blessings to both you and you sister wishing you all the miracles that life has to offer.
Replies to "I was diagnosed with atypical carcinoid of the lung that had metastasized to my lymph nodes...."
Connect
My sister asks if you were able to tolerate the chemo. At the moment she has complications from sugery, inflammation of pericardium, and after ibuprofen treatment has proven ineffective is on cortisone to help reduce inflammation. From what I've read this chemo is very strong and has many adverse side effects. Seeing as my sister has to continue treatment for her inflammation I don't know how she will be able to handle this treatment. Could you also tell me which lymph nodes were affected in your case, your mitosis , ki67, and stage. Thank you.