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Atypical pulmonary carcinoid

Neuroendocrine Tumors (NETs) | Last Active: Mar 3 5:57am | Replies (26)
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@ekri

I will but I feel as if I am at a dead end because chemo that has been recommended isn't necessarily going to guarantee that there is no recurrence and she will have to suffer all adverse effects of this treatment.

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Teresa, Volunteer Mentor | @hopeful33250 | Mar 2 9:32am

Hello again, @ekri,

It has been mentioned several times that a second opinion might be needed in order to be sure that your sister is receiving the best treatment possible. There are lists of NET specialists.

Mayo Clinic has NET specialists at all of the three locations. Often a virtual appointment can be done if your sister is not able to travel. Here is appointment information, http://mayocl.in/1mtmR63. If a Mayo appointment is not possible, here is a list of NET specialists throughout the country, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/.

A specialist specifically trained in NETs is often helpful. Has a second opinion been sought?

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