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Atypical pulmonary carcinoid

Neuroendocrine Tumors (NETs) | Last Active: Mar 3 5:57am | Replies (26)

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@ekri

My sister was readmitted to hospital on Tuesday with chest pain. They were afraid of pulmonary embolism but they eventually said it was inflammation of pericardium ( 1st called it Dressler syndrome today they said Serositis) She has been on ibuprofen and colchicine but CRP level elevates except for 2 days when it dropped. Now they are giving her cortisone intravenous Lyodrol 40 mg. She has had so many post surgical complications. As for biopsy report it says: atypical 4cm carcinoid with necrosis, 1.2 mitosis and ki67 4%. Of the 8 lymph nodes removed, only lymph 7 had focus metastasis of 2mm and oncologist recommends she do 4-6 cycles of cisplatin and etipisode as she is Stage 3. Could anyone give me any feedback.

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Replies to "My sister was readmitted to hospital on Tuesday with chest pain. They were afraid of pulmonary..."

I'm so sorry to hear of your sister's struggles, @ekri. I have not experienced this type of carcinoid, but I'm going to tag some other members who have discussed this so that they might respond to your post, @pattirushing, @ce1b @woundedwarrior1969 @gmapam @californiazebra.

Will you keep posting as your sister recovers from this latest issue?