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Question about PMR pain locations

Polymyalgia Rheumatica (PMR) | Last Active: Mar 1 10:00am | Replies (36)

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@nyxygirl

@reewhite -- this was one of the first papers i found about PMR that convinced me that i wasn't crazy when I said i felt like i was "glued into the bed " when i had a terrible flare up.
Also , until i was bumped up to 30 mg Prednisone , each morning was like Ground Hog Day for my shoulder stiffness. i have history of lumbar issues - while on Prednsione have had no complaints ( 30 mg tapered to 4.5 mg now, last May to now) IS your back pain NEW to you ?

@richardab are you saying that you have had several flares ? What was your inital dose of Prednsione - just curious . Are you considering trying Kevzara ? this Muller paper is also interesting in defining 5 classes of patients

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Replies to "@reewhite -- this was one of the first papers i found about PMR that convinced me..."

@nyxgirl Ihave mini flares, nothing like when it first came on. I've been taking it for 2 years now. Tried methotexate with no effects. Hydroxychloroquine but I found out I'm allergic to it. I looked at Kevzara but I already have a malfunctioning immune system (low immunoglobulins) from Smoldering Myeloma and I'm not sure something this wouldn't reduce them even more. But thank you for the suggestion.