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@colleenyoung

@greenacressoon, like others have mentioned, I would discuss this with your care team at Mayo Clinic. Let them know your concerns and preferences. When patients live a distance from Mayo Clinic, Mayo's specialists will coordinate and work with with local providers. This enables you to benefit from Mayo Clinic's expertise and receive care closer to home, especially for frequent appointment care like infusions and blood work.

I encourage you to ask about follow-up appointments. Many members here have shared how they get a diagnosis and treatment plan with Mayo Clinic specialty teams, receive ongoing care at home and return yearly (or more or less frequently) for check ins at Mayo Clinic for the longer term.

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Replies to "@greenacressoon, like others have mentioned, I would discuss this with your care team at Mayo Clinic...."

Thank you Colleen. I do have a follow up scheduled to review additional imaging and lab work. I asked the doctor if they see local patients for ongoing care like infusions. She said that they did not and that even local patients still need a local rheumatologist. I guess I am odd because I don't view traveling 2 hours to an appointment to be burdensome. Due to the shortage of pediatric rheumatologists, I was often traveling 4 hours each way to get care for my kids when they were children. I have always had the attitude that it was worth it to travel to get good medical care.