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Is enucleation appropriate for me?
Neuroendocrine Tumors (NETs) | Last Active: Apr 3 2:44pm | Replies (28)Comment receiving replies
I am seeing a NET specialist in St. Louis. He sent me to a surgeon. The surgeon said she would do the Whipple but for now wants to wait and watch. Suggested coming back in a year. The specialist agreed to wait and watch but wanted to see me in 3 months with new scan. That will happen March 12. Enucliation was not mentioned by them. I have gotten back to the surgeon and aske why not. She said the tumor was too close to the duct . I want to send these next results to MAYO and get a second opinion from a PNET surgeon. From what I have learned the tumor fits all criteria for Enucliation except the distance to the duct.
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The same thing was said to me. I have a 5-7mm tumor on the head uncinate of my pancreas. They are scanning it every six months to monitor. When I asked the doctor about enucleation, she said it doesn't have a high success rate. I think she is just not able to do the procedure. So I went to get a second opinion from NIH. They said the same thing. The location makes it tricky for the enucleation procedure, although not impossible.
Right now, we are determining whether it's a functional or non-functional--meaning, is it affecting my hormones.