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@tracestew

Were you still actively taking the medicine? I am still treating my first recurrence, after having been MAC free for over a year. I started the meds in July of this year and have been negative for 7 months. But, this last test showed MAC.

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Replies to "Were you still actively taking the medicine? I am still treating my first recurrence, after having..."

When you submit your sputum for cultures, do they ask for one specimen or three? My pulmonologist told me three is best, because any single specimen may be contaminated, but it is unlikely that all 3 of them will be. Then if one grows positive, and the others do not, it most likely means the infection is not in your lungs.
Sue

I also have cavitation. I was culture free of mac after 5 months of the big 3+Amikacin, continued the big3 for 23 months due to the CT. Finally at least stable so w took a break from the big3. Symptoms re occurred 6 months later, restarted big3. Mac cultures negative, PET was negative, but aspergillus started to show confirmed by a super dimension Bronchoscopy which confirmed the aspergillus.