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Debilitating yet intermittent Head/Neck/Back Pain. Psychosomatic?

Chronic Pain | Last Active: Mar 7 9:29am | Replies (19)
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@adjude3

I spoke to both doctors. Neither had heard of any correlation of Fuchs to CSS or Fuchs to Celiacs. Fuchs and Celiacs is discussed on Celiac website, search under blogs (I was warned I cannot post links) topic 85636 fuchs dystrophy.
I cannot find anything anywhere on Fuchs to CSS. Both doctors were very interested and said they would do some research on both. Seriously it's not a big deal either way, I just found our commonalities very interesting. And btw I do not have celiacs.
Eye doctor said my eyes have not changed since 6 months ago. I only had right eye DMEK and wear sclera lens on both. He said second surgery not necessary rn.

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Replies to "I spoke to both doctors. Neither had heard of any correlation of Fuchs to CSS or..."
Rachel, Volunteer Mentor | @rwinney | Mar 7 9:29am

Good morning @adjude3 - Oh dear, my apologies for any confusion on how I presented my CSS case to you. Fuchs itself did not cause my CSS, I believe the stressful experience of it happening and how I responded at that time in my life (*psychosomatic*), contributed to the central sensitization upregulation of permanent changes within my central nervous system. I began experiencing CSS symptoms when I was young and throughout my life symptoms had gone through ebbs and flows of flares and quieter times.

Fuchs to CSS or Fuchs to Celiac is non-related from a perspective of no, neither directly causes CSS however, central sensitization syndrome can be triggered by traumatic childhood events, surgeries, death, chronic conditions like Fibromyalgia, IBS, etc. - basically when a person's nervous system is persistently in a high activity state.

Here is an excellent resource for better clarity -
National Institutes of Health - Central Pain Syndrome:

- https://www.ncbi.nlm.nih.gov/books/NBK553027/

I'm glad you don't have Celiac disease. Check that of the list. And great news on not needing another eye surgery presently. Smooth sailing for now!

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