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Question about PMR pain locations

Polymyalgia Rheumatica (PMR) | Last Active: Mar 1 10:00am | Replies (36)
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@richardab

My PMR, before treatment and when it flares, feels like someone is whacking me with a 2x4 from my upper arms to my knees. My legs were so stiff, Iwas having troubles walking. Even today, after tapering from 15 to 12.5 mg, I feel it in both upper arms but it's bearable.

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Replies to "My PMR, before treatment and when it flares, feels like someone is whacking me with a..."
nyxygirl | @nyxygirl | Mar 1 7:51am

@reewhite -- this was one of the first papers i found about PMR that convinced me that i wasn't crazy when I said i felt like i was "glued into the bed " when i had a terrible flare up.
Also , until i was bumped up to 30 mg Prednisone , each morning was like Ground Hog Day for my shoulder stiffness. i have history of lumbar issues - while on Prednsione have had no complaints ( 30 mg tapered to 4.5 mg now, last May to now) IS your back pain NEW to you ?

@richardab are you saying that you have had several flares ? What was your inital dose of Prednsione - just curious . Are you considering trying Kevzara ? this Muller paper is also interesting in defining 5 classes of patients

Shared files

impediment to living life pone (impediment-to-living-life-pone.0126758.pdf)

2020 longitudinal clusters kez533 (2020-longitudinal-clusters-kez533.pdf)

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