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Myasthenia Gravis: Share your treatment journey

Autoimmune Diseases | Last Active: Oct 21, 2022 | Replies (93)

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@janyce

I appreciate your info. I wish you well. My Neurologist did tell me the first two years after diagnosis are usually hardest. I paraphrase 😏
I pray your aggressive treatment will soon make a big difference in your symptoms.
I am beginning to notice big improvement a few days after my IVIG that last about 10 days.

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Replies to "I appreciate your info. I wish you well. My Neurologist did tell me the first two..."

I feel somewhat lucky in that I've never had ivig. Neurologist told me that it's been 5 years since my initial diagnosis, and MG shouldn't be serious for me. I do have other psychiatric problems caused by MG, I went on a 50 mile bike tour with ocular MG (undiagnosed) nearly killed me and left long lasting damage.