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CSF Leak in spine

Chronic Pain | Last Active: Jun 27, 2023 | Replies (12)

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@gjcurto203

Hello I had spinal surgery 8 yrs ago and 7 yrs ago I started getting intense headaches. I have been trying multiple treatments to help from Botox to nerve block to numerous meds and now my doctor has recommended that I have CSF testing for various leakage which is confirmed. Going to Mayo to have mylogram but I have AS which makes it difficult for the needle to penetrate the spine. I tried to get a test done at Yale but unsuccessful. Hopefully Mayo can . I’m nervous about the test. Headaches are daily now level 10 at times so looking forward to patching it. If they can do it is it temporary or is it permanent

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Replies to "Hello I had spinal surgery 8 yrs ago and 7 yrs ago I started getting intense..."

@gjcurto203 Hello. I just wanted to welcome you to Connect. I am a Mayo spine surgery patient, and what helps me a lot is my physical therapist who has done a lot of Myofascial Release to loosen the scar tissue and overly tight muscles. You could ask about that when you are at Mayo as I have seen they have a couple chiropractors on staff in their rehab departments who do Myofascial Release. I don't know if this can help Ankylosing Spondylitis, but it can help pain that is caused by muscles with too much tension.

Here is our discussion on Myofascial Release:
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
There is a provider search at http://mfrtherapists.com/

Jennifer