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68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Neuroendocrine Tumors (NETs) | Last Active: Apr 20 11:11pm | Replies (31)
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@sophiarose

I meet some of his staff they are wonderful
The issue I have is that this looks like the Everolimus I took for 9 weeks has given me a heart issue
I am on medication which is helping but I am so exhausted and have days when it is really hard to function
I don’t know if I will have the strength to travel to Florida
I know in my heart that I will get excellent care and support at Mayo
If I do NY City I will get excellent care but not the support
It is very upsetting the unknown symptoms of the PRRT scare me
I see my cardiologist on Monday I am hoping we can put our heads together and make a decision

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Replies to "I meet some of his staff they are wonderful The issue I have is that this..."
Teresa, Volunteer Mentor | @hopeful33250 | Feb 29 7:35am

Hello @sophiarose,

I am sorry to hear of the heart issue that you are having as a result of the Everolimus. If you are comfortable sharing more, I'm wondering what type of heart issue you are dealing with. I can understand that this new health issue will make this decision more difficult, especially as you consider traveling. When you said that you would have more support in Florida, is that because you have friends or family there who could help you?

You are wise to consult with your cardiologist before making a final decision. The more medical input you can obtain, the more confident you will be about what direction to take.

Will you post again after you see your cardiologist?

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