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68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Neuroendocrine Tumors (NETs) | Last Active: Apr 20 11:11pm | Replies (31)
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@hopeful33250

Hello @sophiarose,

I am so glad to hear that you were able to meet Dr. Starr. If you have previously seen Dr. Starr, his office staff might be able to answer that question for you.

Will you post again and let me know how you are doing and what decision you make regarding the PRRT treatment?

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Replies to "Hello @sophiarose, I am so glad to hear that you were able to meet Dr. Starr...."
sophiarose | @sophiarose | Feb 29 6:36am

I meet some of his staff they are wonderful
The issue I have is that this looks like the Everolimus I took for 9 weeks has given me a heart issue
I am on medication which is helping but I am so exhausted and have days when it is really hard to function
I don’t know if I will have the strength to travel to Florida
I know in my heart that I will get excellent care and support at Mayo
If I do NY City I will get excellent care but not the support
It is very upsetting the unknown symptoms of the PRRT scare me
I see my cardiologist on Monday I am hoping we can put our heads together and make a decision

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