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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: 2 days ago | Replies (415)
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@jenniferhunter

@dc1995 I wanted to let you know how to send a notification to someone when you reply to their post. If you type their member name with the @ sign in front, like I did for you, they will get a notice in either e mail or the Bell icon On-site notifications at the top right of the screen. In this case, typing @harryfrenchuk will send them your response.

Jennifer

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jvs1987 | @jvs1987 | Mar 1 7:43am

Hi all,

I have been reading this entire thread for the last hour. As most people do not have medical specialists on speed dial (quite the opposite; appointments take weeks), it is very helpful to have a platform to connect to people with similar experiences. We can help each other based on gained knowledge over time where others just started their journey..like me 🙁

I have been experiencing twitching since 4 weeks. It started with occasional twitch but is now more present (all over body, sometimes few hrs non stop). I have seen a neurologist who diagnosed BFS without EMG testing.

I understood that it is common for BFS patients to have twitching muscles that directly stop twitching when moved. For example, if tricep starts to twitch during rest, it should stop when moving the arm. Yes, it continues most likely thereafter, but during movement not.

Is this applicable to you all? Seems not entirely the case for me.

Looking forward to hearing your feedback!

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