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Myasthenia Gravis: Share your treatment journey

Autoimmune Diseases | Last Active: Oct 21, 2022 | Replies (93)
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@Erinmfs

Does anyone use this Discussion Thread for Myasthenia Gravis? I came back to it because I was searching for IVIG. my local internist insisted I find a local neurologist to treat any crisis situation I may encounter,(not likely I'll make it to Rochester is respiratory distress should it happen) so I went to a local neurologist here in my community. He instantly suggested I start ivig. I was furious. My Mayo doctors never suggested for me to have ivig or plasmapheresis.

So, I'm here to ask, do you have ivig or plasmpheresis treatments, and if so, in your opinion, do they help you?

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Replies to "Does anyone use this Discussion Thread for Myasthenia Gravis? I came back to it because I..."
janyce | @janyce | Oct 3, 2019

In April of 2017, I had symptoms of stroke but eventually was diagnosed with Bell’s palsy. Six months later, after seeing Opthalmologists for dropping eyelid, I began seeing double. After much testing including blood tests for MG (negative) it seemed there was no answers. I went to another Opthalmologist who did something with ice on my eyes and he was sure that I had MG. In April of 2019, new Neuro diagnosis of Ocular MG.
This summer I became pretty sick with cough and shortness of breath. Bronchitis and the pulmonary dr arranged for me to see Neurologist who is now treating me for generized MG.
I have had 6 IVIG infusions. I am hopeful.
I am also on steroids and have begun Mycophenolate.
Long story and to answer your question, yes I have had IVIG but time will tell if It will help.

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