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@ellenanne33

Amy husband larry is currently in hospital 6 weeks now in critical condition w what they are saying is perm .apparently ivig ,rituxan and plasmapharesis is not working anymore they now want to to try cytoxin .does anyone know the pros and cons of this medication will it help him or prolong his horrible existence .no quality of life i am seeing if anyone has any info if this has helped ? They are saying now that he has a rarer form.of perm effecting his brainstem ..help please so i can make a descion if we should try new meds

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Replies to "Amy husband larry is currently in hospital 6 weeks now in critical condition w what they..."

@ellenanne33 Have you had discussions with the doctors regarding the outcome of all these medications? Are they expecting a full recovery or a recovery with a good quality of life or poor recovery? Cytoxan is a very serious drug and you want to know that something good will come of it. You might ask the social worker on his unit to help you talk to the doctors. The doctors (neurologists, I’m guessing) are the best ones to know how his brain and body will react to this drug and what the outcomes will be/could be. Please don’t make ANY decision in haste! You want to feel comfortable with your decision and not feel forced into anything.
I just thought of one more thing you could do. (I was a nurse on an oncology unit and we frequently did this). You can ask for a meeting with the ethics committee. This s a group of medical staff who will come in and look at everything related to your husband’s condition and medications; talk to everyone involved and help you reach a decision.
I think I’ve probably said too much, but I hope I've helped.
Will you let me know what you think you might do?
And thank your husband for all he did. And thank you, also, for supporting him then and continuing to support him now. Thank you.