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Is enucleation appropriate for me?
Neuroendocrine Tumors (NETs) | Last Active: Apr 3 2:44pm | Replies (28)Comment receiving replies
Hello @charliepnet and welcome to the NETs support group on Mayo Connect. Your oncology surgeon would be the best one to determine the type of surgery you need. That said, often patients who have had surgery for PNET tend to have Whipple procedures or other treatments.
As mentioned by @lindabees are you currently being seen by a NET specialist? A NET specialist has the most knowledge about appropriate treatment plans. Mayo Clinic has NET specialists in each of their three locations. If you would like an in-person or virtual consult with a Mayo NET specialist here is a link to information to obtain an appointment,
http://mayocl.in/1mtmR63.
If an appointment with Mayo is not possible, for any reason, the Carcinoid Cancer Foundation has a listing of NET specialists throughout the world. Here is a link to that list, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/.
Has the enucleation been recommended to you?
Replies to "Hello @charliepnet and welcome to the NETs support group on Mayo Connect. Your oncology surgeon would..."
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I am seeing a NET specialist in St. Louis. He sent me to a surgeon. The surgeon said she would do the Whipple but for now wants to wait and watch. Suggested coming back in a year. The specialist agreed to wait and watch but wanted to see me in 3 months with new scan. That will happen March 12. Enucliation was not mentioned by them. I have gotten back to the surgeon and aske why not. She said the tumor was too close to the duct . I want to send these next results to MAYO and get a second opinion from a PNET surgeon. From what I have learned the tumor fits all criteria for Enucliation except the distance to the duct.