← Return to 68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Discussion

68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Neuroendocrine Tumors (NETs) | Last Active: Apr 20 11:11pm | Replies (31)
Comment receiving replies
@happycat

Hello Teresa,
If I had a minimal uptake 2.1 SUV 1cm tumor (multiple other had no uptake) on a 68-dotatate scan looking for lung nets, should I ask for one of the other types of scans mentioned in the article. I still need to see a specialist because my hospital has no idea ( I think) they just want to see if it grows and watch it. Also on my last CT which wasn’t mentioned on any other type of scans including the pet, they say I now have a bone lesion. I’m a little concerned about both. The doctors say I have Dipnech and DPM.
Thanks Sherry

Jump to this post

Replies to "Hello Teresa, If I had a minimal uptake 2.1 SUV 1cm tumor (multiple other had no..."
Teresa, Volunteer Mentor | @hopeful33250 | Feb 28 7:41pm

Hello @happycat and welcome to the NETs support group on Mayo Connect. With any NETs diagnosis it is important to have at least one consultation with a NET specialist. Mayo Clinic has NET specialists at all three of their locations. If you would like to inquire about an appointment here is a link to appointment information at Mayo, http://mayocl.in/1mtmR63. If for any reason, you cannot obtain a Mayo appointment, here is a listing of NET specialists worldwide,
https://www.carcinoid.org/for-patients/treatment/find-a-doctor/
How are you feeling, @happycat? Any breathing problems or pain from the bone lesion?

VIEW AND REPLY