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Can anyone help?

Autoimmune Diseases | Last Active: Mar 22 4:28pm | Replies (22)

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@johnbishop

Welcome @cynthiak06, I know it has to be terribly frustrating to be sent to a new specialist only to be told it's not this or that but while at the same time not providing any help or direction. You mentioned recently being diagnosed with vitamin D and B12 deficiencies, Mayo Clinic has some information on B12 deficiency that mentions that it can cause nerve damage and mood disturbances.

"Left untreated, a vitamin B-12 deficiency can lead to anemia, fatigue, muscle weakness, intestinal problems, nerve damage and mood disturbances."
- Vitamin B-12 - Mayo Clinic: https://www.mayoclinic.org/drugs-supplements-vitamin-b12/art-20363663.

There are also many discussions on vitamin B12 deficiency and neuropathy that you might find helpful. Here is a link that shows the different discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=B12+deficiency++and+neuropathy.

Did your doctor suggest or start a treatment for the vitamin deficiencies?

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Replies to "Welcome @cynthiak06, I know it has to be terribly frustrating to be sent to a new..."

Yes I am currently on Vitamins for both D and B- 12 . I have been on then for a month now. My Vitamin D was very very low . It was a 9 . I have been on my Vitamins for a month. Still so very fatigue and tired all the time. Don't know if it was my Vitamins making me like that or both my autoimmune disease as well cause it ? 🤔

Autoimmunes predispose us to pernicious anemia, another autoimmune disease. I self diagnosed PA and my physicians assistant wisely sent me to a hematologist. Her tests showed that I do indeed have the definitive genetic and blood markers, requiring daily methylcobalamin injections. I have to buy this B12 from England, as we only have cyanocobalamin, the cheapest synthetic form, through insurance in the US.
My bloodwork has been the same for 20 years. Why on earth did none of the docs I’ve seen for neuropathy, difficulty walking, pain, fatigue, depression etc. notice the obvious?
Please advocate for yourself soon, before your symptoms become like mine!