Hi Becky. Thank you. Being that both apply to me I’m wondering if I had demyelination occur - then as a result - develop neuropathy as a result possible small fiber neuropathy? CIDP is closest to what I have found. But even that has a laundry list of cause and effects…

I have not yet been diagnosed yet. I am going back to doctor to get answers to what caused all these problems.

Just have these findings, MRI’s of lumbar and sacrum (need assessed the cervical and thoracic spine - having issues). I have some lab tests but they were looking for diagnosis for improbable. My physical therapy doctor mentioned CIDP to me. I learned of it while researching the nerve test findings. So, I suppose next step would be further evaluation…Maybe a spinal tap, radiology and lab tests.

I just saw the pain management doctor today. I am so happy. She said an epidural would help my foot pain. We are starting there and working our way up.

I’m pushing for answers. And bottom line therapies to help me feel better. Even if there is no cure. To have a better ability to live with symptoms.

😊

Yikes...I went to the article and my eyes crossed! My overriding question is: What can we expect in the future due to the demyelination? All I get from my neurologist are vague non answers which makes me conclude that they don't know for sure and all the tests that they perform are being done to track our decline. Ugh. Anyone out there get answers about what to expect? I'd love to hear from you.