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Husband diagnosed with tonsil cancer: looking for tips and support
Head & Neck Cancer | Last Active: Apr 4 11:41am | Replies (174)Comment receiving replies
@hrhwilliam I hear what you are saying. I'm wrestling with this exact thing. Chemo was deemed out for me and with radiation I was told they would watch me. They did a CT which was clean and I'll do PET CT at 12 weeks. Based on pathology, everyone seems confident of this path. But I'll say it does concern me. The logic used was that at my age of 45 and based on the pathology, it would be wise to try and do observation at this time. But you don't know what you don't know so I'm putting a lot of trust in my doctors. Been reading a lot of studies on the topic and it seems like there is disagreement amongst the various areas. The surgeons seem to want to try surgery only in low stage cases but radiology wants to continue with decreased radiation on those cases. So far, radiation is proving to be the safe way to go as it pertains to recurrance. But there are solid surgery only groups as well. Ugh makes my head spin lol
Replies to "@hrhwilliam I hear what you are saying. I'm wrestling with this exact thing. Chemo was deemed..."
Hi Brad. It seems like such a dilemma sometimes, to know what the best course is. I guess it really boils down to you being your own best advocate when it comes to your healthcare..
Personally I am wishing for the day when we can completely get away from radiotherapy and on to some medicine that cleans it all up. We are almost there now and the strides made just in the last few years are amazing. Radiation has caused me more problems than most people could ever imagine. I'm still alive 23 years out but it has been a fight at times.
Hope things work out well for you. I was about your age when I went down the rabbit hole. I wish no one would ever have to join this club. Good healing.
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which solid surgery only groups ? Do you mean reading online in groups ? I understand its hard to know if surgery is enough even though some fantastic surgeons and pathologists are confirming that route for now with check ups etc.