@johnbishop thank you so much for the resources. I'll definitely check them out. Unfortunately I have seen a primary care doctor, 2 neurologists, and a rheumatologist and they can't seem to find a cause. I have had many tests and scans done as well as a skin biopsy but no real root cause. I had a positive ANA test which can indicate an autoimmune disorder but the neurologist also said it can be positive for healthy adults. I feel like there is still something there to investigate but the neurologists seem stumped at this point. not giving up on finding the cause or seeing what treatments might help.

I requested an appointment at Mayo Clinic but was turned down as they stated they have more requests than appointments available and based on what I have done so far they didn't know if they could do anything further. I was really disappointed by this decision as I know they are the best hospital in the world and hoped they could take what I had done so far and help me find a cause and solution to help.