Connect
← Return to Myasthenia Gravis: Share your treatment journey
Discussion
Myasthenia Gravis: Share your treatment journey
Autoimmune Diseases | Last Active: Oct 21, 2022 | Replies (93)Comment receiving replies
I can relate. I was first diagnosed with Devic's Disease in 2007. I was paralyzed midback down. Had complete weakness. I lost bladder control. 2 years later while I was already weak I was also diagnosed with MG. I couldn't hold my head up and had double vision. I couldn't keep my eyes open. I was written off as terminal and told I didn't have a long expectancy. That was 6 years ago and take Mestinon, Prednisone and IVIG. I taught myself to walk but have to use it for long distances as I fatigue easily. I use an electric wheelchair for long distances.
Replies to "I can relate. I was first diagnosed with Devic's Disease in 2007. I was paralyzed midback..."
I am trying to unsubscribe from this and I don’t know how. Please unsubscribe me from all
Hello @msupacker -- welcome to Connect. When you get the email notification for this message, go to the bottom of the email and click the Unsubscribe from this thread and that will stop the email notifications from getting mailed to your email address. You can also click on the Account Settings link to go to your account settings where you can control when and how often Mayo Clinic Connect sends email to you by choosing your Email Notification settings.
Hope this helps. ~ John
Connect
Hello @rapidgirl1
I see that you just joined Mayo Connect - welcome! I am so pleased that you have made such great progress after being given such a dire diagnosis. Congratulations!
If you are comfortable sharing more, please let us know something about how you helped yourself to make such progress. Was it physical therapy or other methods? Was their a particular doctor or other health professional that assisted you?
I look forward to getting to know you better.
Teresa