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IGA NEPHROTHY

Kidney & Bladder | Last Active: Feb 29 11:12am | Replies (12)

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@roxylulu22

My husband has IGa and sadly it was not caught until he was at end-stage renal failure. He experienced similar symptoms and in the end, his high blood pressure was the cause of his headaches and lack of appetite. Being diagnosed with kidney disease is hard it does feel that everything changes so fast! Prednisone is not without side effects as well, so that is also hard. He was on a high dosage at first and it left him feeling anxious, sleepless, and just not himself. He is now 1 year (celebrated Feb 23rd) post-transplant and is still on low doses of prednisone to prevent the IGa from attacking his new kidney. He is on 5mg and tolerates that fairly well. What dosages are you on and what are the next steps for you?

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Replies to "My husband has IGa and sadly it was not caught until he was at end-stage renal..."

I'm Glad to hear he's doing well. I started at 40mg now I'm on 30mg will keep going lower each month. Right now just waiting on them to get me on kidney waiting list and I have already put it out there I need a kidney bestie 😊