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Does Mayo Clinic do insulinoma testing?
Neuroendocrine Tumors (NETs) | Last Active: Mar 2 7:04pm | Replies (10)Comment receiving replies
Bethany,
I cannot answer the insurance question so I will defer that to someone else who has more insight into that aspect. However, I have been through insulinoma testing at Mayo. The hospital in NC where I had my original 72 fast that was positive found 2 insulinomas with a endoscopic ultrasound after the fast. When hypoglycemia persisted after my Whipple procedure, my NC endocrinologist referred me to Mayo. Through a week of testing and subsequent surgery, there were 9 more insulinomas. Mayo has several tests that can be done when searching for insulinomas. I am happy to answer any questions you may regarding the testing and wish you the best in your journey! Take care!
Replies to "Bethany, I cannot answer the insurance question so I will defer that to someone else who..."
@ahtaylor
Hello! Can you please tell me which doctor you saw? I live in Florida and my daughter has been dealing with hypoglycemia for the past five years and had been experiencing all the typical hypoglycemia symptoms but also has neurological symptoms and seizures. We suspect she may have an insulinoma and are looking for a doctor who specializes in this. Can I private message you for details on who you saw?
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Do you mind me asking if you felt the hospital/doctor in North Carolina was an excellent experience? I am also located in NC and wondering if I should just go to Mayo for all the testing or if there are any specialists near me when it comes time for surgery. It seems there is one at Duke but that is the only one with insulinoma experience I can find. Would love to know your thoughts!