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Myasthenia Gravis: Share your treatment journey

Autoimmune Diseases | Last Active: Oct 21, 2022 | Replies (93)

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@gretagean

Thanks, @lynnes. That is helpful, as is the "shout-out" of support from others. I am responding well to mestinon, I think but I'm guessing dosages will be increased in the future. They initially put me on prednisone when they suspected Bell's palsy but that did nothing so I will be somewhat dubious if we try that in the future...but I don't have bad side affects so I'll again consider that good luck! My concern during the "11pm" hour (when I always am at my lowest optimism--or perhaps the most realistic?) is, this is now my 4th and most serious autoimmune condition. I am fortunate, again the others are really not in any way debilitating, nor a health risk--NOW that I am aware of them and manage them: from inconsequential working up: 1.Renauds (where you lose circulation to fingers or toes, caused by cold or stress, but capillaries remain constricted); 2. severe gluten intolerance or celiac-can't tell which because I've lived gluten free for 20 years and cannot survive a wheat diet long enough to produce a valid gluten challenge. And 3.Hashimoto's (autoimmune hypothyroidism). This appears to have started2-3 months before 4. MG. My concern NOW: WHAT'S next? I had Hepatitis A in the past...and Epstein Barr. Hate to borrow trouble, but darned if I'm not feeling deja vu all over again: 1. Discomfort under right ribs, 2. Zero appetite first half of day for weeks, 3. Whacko ibs (constipated,switches to opposite then back again), nausea. Tired, tired, tired. Well, hard to untangle all this from the confusing introduction to my new "MG body" but....from what I read of autoimmune Hepatitis predisposition, I sound like a perfect checklist. I do not want another autoimmune condition. I want to calm my system down. Thoughts on immune system and reactions to nightshade plants ( tomatoes, eggplants, peppers?) Any other thoughts on calming down my system? I have a happy life, suuportive spouse, lots of good things around me. I am now napping like a 90 year old and proud of it! 😀 etc... gonna get gung ho about loving the sh*t out my new MG life, guys, because this IS the one I've got!! (Just prefer not manage any more on my dance card). Advice welcome....positive vibes too...

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Replies to "Thanks, @lynnes. That is helpful, as is the "shout-out" of support from others. I am responding..."

I know this is an old post but how is it going?
I have autoimmune disease on top of autoimmune disease on top of autoimmune disease… the “specialists” just keep adding diagnosis after diagnosis.
And the “autoimmune disease” has not affected nearly every organ in my body.
Any updates?