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DiscussionGCA prednisone vs. actemra infusion therapy
Polymyalgia Rheumatica (PMR) | Last Active: Nov 22 10:27am | Replies (48)Comment receiving replies
Replies to "I have GCA and am now on 12 mg of prednisone. Concerned that when I go..."
Hi Susan, I got all the way down to 5mg and just had a major flare. I had to go back up to 30mg and still have some symptions so I might need to go back up to 40mg and start all over. This happened to me in late April of last year. Got down to 10mg and had a major flare. My personal opinion we went too fast. I need to go really slow once I get to 10mg. Of course everyone is different, but I'd rather not be in such a hurry to get down and then have this happend and have to go back on high dose. I'm getting know where. I told my rheumy we need to slow it down. It will be 2 years on May 5th that I have been on prednisone, which is not good. This is an up and down journey and is very stressful and disappointing to say the least when this happens. My advice is to listen to your body and if you have any symptons do not push it. Good luck to you and keep us posted on how you are doing.