Bone Coach - How do you know it works?

Posted by sheilad1 @sheilad1, Dec 13, 2022

I have seen several people here joined Bone Coach. How do you know your osteoperosis is better. The testimonials talk about general health improving which adherence to any healthy diet may have done the same.
There is no science shown. It's pricey but worth it if it works.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@tilou - if I were you I’d just email him back at the site you get those messages from . He actually got back to me , but have to say I was at that point considering it and had done some of the preliminary gathering of information from me. …..and then I wanted more information , so maybe that’s why he emailed back . At that point I was and had been learning a lot and figured I was in an Ok place and decided not to join . But there are different levels of joining too. The other thing was I still was and still am receiving informational emails from him about 1x per week. I had hooked up with Margie Bissinger and her HappyBones , Happy Life program and continue to learn . I believe I paid like 250 for the year and we get 4 times with her a month. 2 expert guest lectures per month, 1 question and answer zoom, and 1 Happiness training . Margie is a Happiness Trainer as stress is a big factor with osteo and she’s convinced it’s super important to address. Maybe consider that avenue as a place to learn ?? Good luck to you.

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@tilou

In reply to lynnhaz, maybe you can answer my question asked a few months ago directly to that company Bone Coach about the cost of their program. A the time I would have like to investigate all the avenues available to treat osteoporosis. Unfortunately what I received from it was promotion after promotion but no idea of what it was going to cost me. So not having any answers I decided to abandon my research about it. I have received multiple emails enticing me again to join their program but without receiving an answer about its cost. Why must it be such a surprise?

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It seems like there are other good programs out there that are more enticing than Bone Coach. I'm passing.

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@imay

I have been using Tymlos for 7 months. I just had a scan, although the bone clinic here did not do one before I started and usually does not do on before you have been on it for year. However, I have heard that the largest gains are made in the first months of use. The scan showed slight improvements in my wrist and lumbar spine over the last scan two years ago, but my hip was slightly worse. It could have gotten worse still after the previous scan and improved after all but we have no way of knowing. Two of my liver enzymes are elevated; it seems that is not unusual for ATP but I haven't found anything mentioning AST. Still, Tymlos seems to be a little more effective than Forteo, and possibly safer than Evenity, which substantially increases the risk of major cardiac events in some people. It does preserve old bone as well as help build new bone, but not in the same way that bisphosphonates do.

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Fact check here - there is no evidence that Evenity "substantially" increases cvd risks. There was one study where the Evenity side of the trial did very slightly worse than the biophosphnate on the other side in number of cvd events. In another trial Evenity was the same as placebo for cvd incidents. So I would say there is a slight possibility of increased risk with Evenity. Some "top osteo docs" have stated in interviews etc that they suspect there is no increased risk with Evenity for cvd.

Nothing suggestive of cvd incidents has shown up in osteoporosis forums that I know of. The only safety factor that I know of that weighs against Evenity is just that it hasn't been in use as long. Sometimes problems don't show up for years. Full disclosure, I'm getting my fifth Evenity shot today.

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@ans

@tilou - if I were you I’d just email him back at the site you get those messages from . He actually got back to me , but have to say I was at that point considering it and had done some of the preliminary gathering of information from me. …..and then I wanted more information , so maybe that’s why he emailed back . At that point I was and had been learning a lot and figured I was in an Ok place and decided not to join . But there are different levels of joining too. The other thing was I still was and still am receiving informational emails from him about 1x per week. I had hooked up with Margie Bissinger and her HappyBones , Happy Life program and continue to learn . I believe I paid like 250 for the year and we get 4 times with her a month. 2 expert guest lectures per month, 1 question and answer zoom, and 1 Happiness training . Margie is a Happiness Trainer as stress is a big factor with osteo and she’s convinced it’s super important to address. Maybe consider that avenue as a place to learn ?? Good luck to you.

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There are so many so called specialists on the subject that I have my reasons to be sceptical about recommendations but for sure I am learning. However the amount of recent podcasts or other paying enticements on the internet give me the tendency to doubt of their effectiveness. Nevertheless it might only be me who has those thoughts but I am still listening to any advices and opinions. Thank you all for your collaboration here.

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@awfultruth

Fact check here - there is no evidence that Evenity "substantially" increases cvd risks. There was one study where the Evenity side of the trial did very slightly worse than the biophosphnate on the other side in number of cvd events. In another trial Evenity was the same as placebo for cvd incidents. So I would say there is a slight possibility of increased risk with Evenity. Some "top osteo docs" have stated in interviews etc that they suspect there is no increased risk with Evenity for cvd.

Nothing suggestive of cvd incidents has shown up in osteoporosis forums that I know of. The only safety factor that I know of that weighs against Evenity is just that it hasn't been in use as long. Sometimes problems don't show up for years. Full disclosure, I'm getting my fifth Evenity shot today.

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I hope that Evenity works well for you. Are you referring to the ARCH or FRAME study? Amgen has warned of the risk of MACEs from the use of Evenity, especially in a subgroup of patients with Chronic Kidney Disease and a history of fairly recent heart attacks, strokes, or other cardiovascular events and possibly older people. The results of the two trials are not entirely consistent. It is possible the warning, required by the FDA, will be removed over time, just as concerns about bone cancer from the anabolic drugs has waned as more data has accumulated. However, many experts do have reservations at this time, even while acknowledging that Evenity is likely to be the most effective option for many people, in part because it has anti reabsorption properties as well as the as the ability to promote the growth of new bone. I did not mean to imply that it is a bad choice for everyone or for you.

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@imay

I hope that Evenity works well for you. Are you referring to the ARCH or FRAME study? Amgen has warned of the risk of MACEs from the use of Evenity, especially in a subgroup of patients with Chronic Kidney Disease and a history of fairly recent heart attacks, strokes, or other cardiovascular events and possibly older people. The results of the two trials are not entirely consistent. It is possible the warning, required by the FDA, will be removed over time, just as concerns about bone cancer from the anabolic drugs has waned as more data has accumulated. However, many experts do have reservations at this time, even while acknowledging that Evenity is likely to be the most effective option for many people, in part because it has anti reabsorption properties as well as the as the ability to promote the growth of new bone. I did not mean to imply that it is a bad choice for everyone or for you.

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I've seen questions on YouTube about the safety of Evenity if a person has high blood pressure controlled by meds. It doesn't seem to be contraindicated, but any thoughts on that?

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@babs10

I've seen questions on YouTube about the safety of Evenity if a person has high blood pressure controlled by meds. It doesn't seem to be contraindicated, but any thoughts on that?

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Hypertension is a risk factor, and as with diabetes or kidney disease, I guess that it would depend on if your blood vessels or cardiovascular system have been damaged before you got your BP under control. BP often goes along with chronic kidney disease, but as far as I know that subgroup was not analyzed. My understanding is that doctors do prescribe it for people with hypertension on a case by case basis. I imagine they would assure that it is under control first. I was interested in it because of the Medicare coverage but the PA who advised me was against it. I may ask to follow up with a few months of it when I finish Tymlos.

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Has anyone looked into the claims of Dr. Jayson Calton regarding micronutrients and osteoporosis? The claim is that his wife had severe osteoporosis at the age of 30 and together they reversed it. I'm such a skeptic of all these "experts" on osteoporosis. I have osteoporosis and last spine TBS report shows -3.9 to -4.2 in lumbar region. Unfortunately, my osteoporosis is from taking Letrozole (Femara) for ovarian cancer.

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@sanz

Has anyone looked into the claims of Dr. Jayson Calton regarding micronutrients and osteoporosis? The claim is that his wife had severe osteoporosis at the age of 30 and together they reversed it. I'm such a skeptic of all these "experts" on osteoporosis. I have osteoporosis and last spine TBS report shows -3.9 to -4.2 in lumbar region. Unfortunately, my osteoporosis is from taking Letrozole (Femara) for ovarian cancer.

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I sure share your skepticism regarding "experts." It's impossible to find a universal opinion on anything and I feel like I'm throwing darts as I find just as many opinions supporting one opinion as I find against that same opinion. I'll follow your post and see what others have to say. I trust people in this group more than I trust physicians.

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I did not sign up, but found this interesting. I hope you all can view this. Can you?
https://secretstolongevity.byhealthmeans.com/expert/kevin-ellis/

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