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Myasthenia Gravis: Share your treatment journey

Autoimmune Diseases | Last Active: Oct 21, 2022 | Replies (93)

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@gretagean

Hi. Pretty certain I have I have MG, in absence of other differential diagnostic conclusions thus far. Only sf emg left. On mestinon for 6 weeks, mostly ptosis, eye control problems, sudden onset daily severe overall fatigue, right forearm and hand stability loss of of contol, with tremors, flapping.

Now I get "storms" of micro twitches throughout my entire eye orbit muscles...todaytoday it began in my upper lip/face area below my nose. No one can see unless they look very closely, but it feels very strange, and it goes on for an hour or longer. Is this MG or mestinon? Ideas? Wondering what might I I expect next...

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Replies to "Hi. Pretty certain I have I have MG, in absence of other differential diagnostic conclusions thus..."

You honestly do sound like you have many symptoms I have. This article is old… I’m curious, how are you now? Diagnosis? Treatment?