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Hello! Yes this is not a group I would like to be in. And I have had so many questions. Some things haven’t gotten answers for. I had to have a biopsy on both breast. The he results from that biopsy is that I have LCIS in both breasts and ALH in my right breast. I was told this puts me at a 40% more likely chance to develop breast cancer. I live in Greenville, SC. We have a Breast Cancer Prevention Center here. I have gone to one appointment so far. The want me to go on Tamaxifin. I also have Lupus. After speaking with my Rheumatologist, I found out that Luoys increases your chance of getting Uterine Cancer as well as this medication. So I have decided not to take the medication. I will have a mammogram and MRI next once a year (every six months). I am taking this very seriously due to the information I have found and told. I did have a lumpectomy on both breast. I hope this helps. Please feel free to reach out to me with any more questions. I find it comforting to be able to speak with someone that has a similar or same diagnosis.
Nancy
Replies to "Hello! Yes this is not a group I would like to be in. And I have..."
I was diagnosed with LCIS when I was in my late 40’s. I took tamoxifen for 5 years. My uterus grew quite large. There was a concern of cancer but all benign polyps. Then 9 years later I was diagnosed with ILC. So the moral of the story for me was the tamoxifen did not prevent breast cancer. The breast index test shows that I would benefit from another 5 years on anastrozole but with an addition of osteoporosis diagnosis that remains to be seen.
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@nbrooks i was also diagnosed in 2021 with invasive DCIS and had a lumpectomy, chemo, and then radiation. Unless someone has been through it, they don’t understand. I totally agree, we need to support each other and I appreciate your answer to my question. Please feel free to ask me any questions as well. Prayers and hugs to you 🙏