@difabio3 , @colleenyoung , @justk, @mollyelisa ,@tirpaka , @jestherdh
Hi everyone,

I recently came across this group and I just wanted to start by sending warm wishes and well-being to everyone in this group.
In 2020, my wife was diagnosed with Anaplastic Hemangiopericytoma Grade 3 (WHO classification). She underwent surgery in June of that year, a right temporal craniotomy, to remove the hemangiopericytoma of the meninges. This was followed by 30 sessions of radiation therapy. Initially, the treatment seemed successful, with regular MRIs every six months showing no signs of recurrence. However, in January 2022, the cancer returned, this time in the spine. She underwent a C7 corpectomy with cage placement in April 2022, followed by 27 sessions of radiation therapy. Since then, she has been monitored with alternating MRI and PET scans every three months.
Unfortunately, in September 2023, a new suspicious lesion at the right occipital extra-axial dural-based region was detected, along with complications from radiation necrosis. This has led to her experiencing weakness on her left side, particularly in her foot and leg, causing difficulty walking and maintaining balance. Additionally, she has been experiencing vision problems in her left eye. As a result, she recently began a new treatment plan, receiving Avastin (bevacizumab) therapy every two weeks to address the radiation necrosis.
I'm here to learn from your experiences and insights on how best to support her through this journey