Delia - thanks for your response - it contains helpful information. Yes, I have been to three teaching hospitals, many expensive tests only to be told I have Spinal, Cerebellar Ataxia, all test results were negative except for GAD65 blood work. (No one has told me the cause of Ataxia) - Neurologist who did Lumbar Puncture on me claimed he could get no Spinal Fluid during puncture - so I had to go back and have 2nd Lumbar Puncture in the Hospitaal and no one reviewed those results with me despite my repeated requests for same. Neurologist wanted to repeat Genetic Testing, but I understand that expensive test results would not change, so why rpeat it. One of the doctors wants me to have IVIG therapy because of the high result from the GAD65 test. To me the high GAD65 result is indicative of the presence of high infection in my body. My grandson told me to have mold testing done on my home (just bought it in 2016/20117 when I got sick) and evidence of Aspergillus mold was found but my Primary Care told me that "Aspergillus is everywhere". I am in a quandary how to go forward and I am losing my ability to effectively communicate or ask for help.
Hang in there! I’ve had Cerebellar Ataxia all my life! It is frustrating because, many times, there’s only so much Doctors can do to help! I am in my late 70’s, and am starting physical therapy next month! I have Parkinson’s too, and my gait and balance have gotten worse, in the last 6 years, since I was diagnosed with Parkinson’s!