Connect
← Return to Newly dx with stiff heart
Discussion
Comment receiving replies
Thanks for info. I sent a message to my heart doctor at the Presbyterian
hospital where I had my heart scan.
He initially stated it was stiff heart.
When I did some internet searches I find different and confusing results,
Another call to my heart doctor said no when I had was heart failure with
preserved ejection fraction, and that it was designated as HFpEF. he
described it to me as the left ventricle in the heart has thickened walls
in and that when it gets ready to pump, there’s not enough blood in that
ventricle to fill and pump through the rest of the heart. He said the only
medicine was the spironolactone, and there may be some help with the SGLT2.
I had my GP prescribe Farxiga
Which is very very expensive even with Medicare/Aetna.
I am also diabetic and have high blood pressure. Doc also advised me to
exercise to lose weight and get heart rate up
It currently stays around 35.
Does this sound like what your husband had?
Thanks so much for your help. Have a blessed day Pat.
Replies to "Thanks for info. I sent a message to my heart doctor at the Presbyterian hospital where..."
Connect
My husband’s heart was not affected by amyloid. His was localized to the kidneys. His kidney function was good when MD Anderson began treatment. They mishandled him during the stem cell transplant. Amyloidosis is tricky, and MD Anderson, although claiming at the time that “they did everything”, made many errors, we later discovered at Boston. He is now on dialysis. Doing research is critical. We were sent to MD Anderson by his doctor and allowed the reputation of the hospital to sway us into having treatment there.
The team at Boston was very kind and always approachable. An amazing place. I hope that you get answers to your questions and are able to get the best care.