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@speechless623 I have Ataxia because my Cerebellum has areas of atrophy. My balance is horrible but for me, it’s the eye sight issue is devastating. I have double vision especially in the morning. It is with me all day and shows up when I look in any direction.
My ophthalmologist declared my eyes to be healthy He said my problem is my brain. Unfortunately, I can’t drive anymore. There are volunteers in my community who have been helping by taking me to doctor’s appointments.
Replies to "@speechless623 I have Ataxia because my Cerebellum has areas of atrophy. My balance is horrible but..."
I commiserate with what you are experiencing, SusanEllen💖, and so sorry that your symptoms are getting worse.
Losing your sight must be especially devastating, along with not being able to drive anymore.
May I ask if you live on your own? Perhaps your medical insurance can provide names of organizations that can offer services that can help you. Our county Office of the Aging offers groups that address just about everything and anything that affects seniors and their health. Our town's Senior Center provides and delivers lunch meals and to homebound senior residents, at a nominal to zero fee. They also provide transportation when/as needed.
I've had double vision since 2013. For me, it rarely crops up during the course of the day. If I sit/lie down, and either turn or tilt my head even ever so slightly, the visual quickness activates. Sometimes happens when sitting upright also, but not often and definitely not while engaged in activities. Moving my eyes around and changing position (even by propping myself up with pillows) can "make it go away." Over time, I've gotten used to it. I've even found it amusing at times to see the variety of effects on the object that gets affected. For example, while watching TV faces can get four eyes, one long nose and two mouths....kind of Picasso-esque. Or the weirded out heads can juxtapose or be one just above or slightly to the side of the other, giving a Siamese effect. It does not affect me otherwise, no interference with activities. Definitely doesn't show up at all when driving. Since retiring in 2010, I rarely drive, and destinations are local. When we have a need to do shopping, errands, medical appointments, my husband drives. The neuro-ophthalmologist is baffled and suggested a prescription for glasses with a prism but I turned it down since I only need 225 strength glasses for reading --- and threading a needle! Distal vision is 2020 ever since cataract surgery back in 2020. Quite honestly, I miss having glasses and on occasion I catch myself reaching for them upon waking up (having done so for decades since about age 9).
Is it dizzying to have constant double vision? Does it contribute to balance problems?
You are included in my prayers, SusanEllen.🙏🏽
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I am sorry and can undestand your pain. May I ask what test determinted the cause of your Ataxia as being Atrophy of your Cerebellum?