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@dadcue. Thank you for explaining more fully your uveitis journey. I think it’s so critical to be attuned with your body to the extent that you are. I know that works for me as well. Being aware to how medication is affecting your symptoms is also essential. Is uveitis a recurring issue, or autoimmune or a day to day condition? It sounds like you have an excellent ophthalmologist which is also critical. Like a lot of people I live in an area that has several reputable sources for ranking doctors. I start with Health Grades which is online and then I check local reviews and recommendations. I cross reference the best doctors with doctors covered in my medical plan. I remember selecting a doctor as the winner of my research for a condition years ago, and he didn’t accept insurance period. But most of the time my system has worked well for me.
Replies to "@dadcue. Thank you for explaining more fully your uveitis journey. I think it’s so critical to..."
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https://www.nei.nih.gov/learn-about-eye-health/eye-conditions-and-diseases/uveitis#:~:text=Uveitis%20is%20inflammation%20inside%20your,healthy%20tissue%20in%20your%20eyes.
My uveitis was always the autoimmune kind. It was rapid onset and recurred every year or so for some unknown reason. My uveitis was usually "aggressive" but not always. My flares could be full blown in a matter of a few hours.
Fortunately my uveitis always responded to a high dose of prednisone followed by a fast taper . I frequently did 60 mg of prednisone back to zero again in a month without any problems
Uveitis can also be "smoldering" and chronic. Low amounts of inflammation that is usually controlled by steroid eye drops or a very low dose of prednisone.
My uveitis is probably genetic but what triggers the flares is unknown. My genes probably predispose me to other autoimmune disorders. I have several autoimmune disorders including PMR. I have needed a lot of prednisone since I was first diagnosed with uveitis almost 40 years ago.
I'm now completely off prednisone and treated with a biologic that works well.