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← Return to I have LCIS, anyone else?
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Breast Cancer | Last Active: Jun 18 9:20am | Replies (61)
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@nbrooks - I'm sorry that you are part of this group...not a group one chooses to be in, but glad that it is here for all of us for support. If you don't mind answering, but was your initial diagnosis LCIS, or was it an upgrade from a different initial diagnosis, like atypical lobular hyperplasia (ALH)? I have been diagnosed with ALH and was told that it will not turn into cancer, but that it is a marker for potential cancer that is lurking elsewhere. Thank you.
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Hello! Yes this is not a group I would like to be in. And I have had so many questions. Some things haven’t gotten answers for. I had to have a biopsy on both breast. The he results from that biopsy is that I have LCIS in both breasts and ALH in my right breast. I was told this puts me at a 40% more likely chance to develop breast cancer. I live in Greenville, SC. We have a Breast Cancer Prevention Center here. I have gone to one appointment so far. The want me to go on Tamaxifin. I also have Lupus. After speaking with my Rheumatologist, I found out that Luoys increases your chance of getting Uterine Cancer as well as this medication. So I have decided not to take the medication. I will have a mammogram and MRI next once a year (every six months). I am taking this very seriously due to the information I have found and told. I did have a lumpectomy on both breast. I hope this helps. Please feel free to reach out to me with any more questions. I find it comforting to be able to speak with someone that has a similar or same diagnosis.
Nancy