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Beware the siren song of the greedy urologist.

Prostate Cancer | Last Active: Mar 5 3:50pm | Replies (31)

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@ranger44

My PSA had climbed to 6.24 from 4.7, My PC referred me to a urologist, he ordered a pmMRI and a 4K score blood test, MRI was PIRADS 4 with a 12mm lesion and the 4K score max at 95. I then transferred to Mayo and they did an MRI Fusion perineal Biopsy, 23 cores, 6 with 70% Gleason 4+3=7 another 3 with 40% Gleason 3+4=7 and 14 cores benign. No other sign of cancer outside the capsule. I am 70 yrs old, my Dad had PCa at 63 but lived to be 90. After the biopsy I met with the Nurse practitioner, ( not the doctor) who gave me the results and said the urologist was recommending surgery, like I would just accept that and she said they would reach out to schedule. I said not so fast, I started doing tons of research, and I got them to do a PSMA PET which also confirmed the MRI results and I had them order a Decipher test, which I am waiting for the results of. Bottom line, I had to insist on the PSMA PET and Decipher, as I wanted all possible information before making a decision as to what treatment if any to have. I was leaning against surgery and after meeting with the surgeon, he said at my age I was not a good candidate, as it was MAJOR surgery, and recovery and complications could be difficult. I was relieved, as I did not want surgery, especially after asking him all the details. My prostate is 50.4 CC or grams, about the size of a lemon, and they just cut the whole thing out, not just the tiny area of the tumor which is only 12mm ( 1/2inch) and volume of .42 CC Since the Urethra goes right thru it they cut about 2 inches of it out with the prostate then pull down the bladder neck and pull up the urethra to re attach. Just a horrific thought, and shortens the penis by 1-1.5 inches. You have to wear a catheter for 2 weeks or more and you have a 10% chance of incontinence for life. NO THANK YOU Even after Radical Prostatectomy ( now I know why they call it radical) there is a 20-30% chance the cancer comes back. Then your other choice is radiation, poisoning your body and can also have side effects of incontinence and ED. Because the voulume of my tumor is so small ( not even 1/50th of my prostate) and my PSA only 6.24 I am meeting with my urologist to talk about Focal Treatments HIFU, Cryotherapy or even the TULSA PRO, it makes a lot more sense than surgery or radiation. Also I am in no rush, probably won't have any treatment until fall of this year, another 7-8 months. Even the experts admit that Gleason 4+3= 7 with a very small volume is not going to metastasize for another 5-7 years and then you have another 5-10 years before you might die from it. In other words, at my state right now, the 15 year survival rate might only be 10 % better with treatment than if I do active surveillance, or nothing. I have zero interest in living past 85 and would be happy to make 80 with no quality of life issues. Just my own personal opinion, each persons situation and life goals are different

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Replies to "My PSA had climbed to 6.24 from 4.7, My PC referred me to a urologist, he..."

That ‘s an excellent decision at your age. Don’t discount Cyberknife - yes it’s radiation but very low side effects and very high cure rate.
And yes, surgery IS MAJOR and not as ‘non-invasive’ as they make it sound. Best to you!

Hi Ranger44 - good to be your own advocate for sure. Radical surgery would not be my choice either. On the longevity remark, once you hit early 80's and reasonably healthy then there could be several more good years ahead. Setting your limits on making it to 80 and/or not going past 85 would not be my vision (I'm currently 83 and I want at least 10 more with quality - God willing). Just an opinion.
Keep chasing the best treatment options. Good luck.

Here's one other focal treatment to consider. I had the Irreversible Electroporation (IRE) treatment about 7 weeks ago. It was an outpatient procedure. Since my tumors were all within the prostate, I was a good candidate. The doctor said that IRE and cryotherapy would both be effective given the location of the tumors (toward the front of the prostate). This procedure uses electrodes to essentially electrocute the tumor. It was similar to the transperineal biopsy as to the location. It was not particularly painful; I only used tylenol for a few days. I had a catheter for six days. It wasn't as bad as I had imagined. I even removed the catheter on my own without incident. I had blood in my urine for about six weeks, but that was probably longer than usual due to my taking blood thinners due to heart issues. There has been a bit of incontinence, but not too much. I had this done at Moffitt Cancer Center in Tampa. I think some of the Mayo Clinic locations may use this focal treatment also.

Best wishes for a successful outcome.