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Ataxia

Brain & Nervous System | Last Active: Feb 28 3:42pm | Replies (67)

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@speechless623

I was dagnosed with Spinal Cerebellar Ataxia in 2017 and it has steadily worsened. I have hemiplegia, extreme difficulty speaking and atrocious balance, I have had many many tests done, but the only positive test result was GADS 65 Blood test. I even had Genetic Testing done (came back negative). The Neurologist has asked me to repeat the Genetic Testing (I do not understand why - its an expensive test and my understanding is the results for Genetic Testing do not change? I have lost my employment due to my worsening debilitating condition - I have had no treatment - not sure what to do? I had a stroke in 2013 diagnosed by PAC (Primary Care Phhysician Assistant). The Neurologist that I was seeing retired in 2017 but told me he did not think I had a Stroke, he said he thought I had Epilepsy, but did not write it in my chart because he said I would lose my driver's license and he knew I needed to work to support my family. Any helpful suggestions will be appreciated?

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Replies to "I was dagnosed with Spinal Cerebellar Ataxia in 2017 and it has steadily worsened. I have..."

@speechless623 I have Ataxia because my Cerebellum has areas of atrophy. My balance is horrible but for me, it’s the eye sight issue is devastating. I have double vision especially in the morning. It is with me all day and shows up when I look in any direction.
My ophthalmologist declared my eyes to be healthy He said my problem is my brain. Unfortunately, I can’t drive anymore. There are volunteers in my community who have been helping by taking me to doctor’s appointments.